Carole Zangari, Tabi Jones-Wohleber, Rachel Langley, & Michaela Ball: The ”Stepping Into AAC” Project

This week, Rachel and Chris interview the superstar members of the “Stepping Into AAC” project - Carole Zangari, Tabi Jones-Wohleber, Rachel Langley, and Michaela Ball! The “Stepping Into AAC” team shares about the core mission of the project: to introduce people to AAC, to guide them through the early months of using these new communication tools and strategies, and to offer resources to engage school teams and other caregivers. The program is divided into 20 parts with the intention to complete one part a week, making it more manageable!

 

Before the interview, Chris and Rachel share about their experience over the summer meeting up in Virginia! Chris also shares about Jennifer Wexton, a congresswoman with progressive supranuclear palsy who recently became the first person to use AAC on the floor of the House of Representatives!

 

Key Ideas This Episode:

 

Family-Centered AAC Education and Support:  The “Stepping Into AAC" project focuses on helping families understand and implement AAC through accessible training materials. These materials include videos, hands-on activities, and newsletters designed to empower families of individuals with Angelman syndrome and other AAC users by offering practical tools for communication development.

 

Habit Formation as Key to AAC Success: The “Stepping Into AAC” project emphasizes the importance of habit formation for long-term success with AAC. By breaking AAC learning into manageable steps and activities spread over 100 days, the program encourages families to develop habits that integrate AAC into daily life, making it more natural and sustainable over time.

 

Building Community Around AAC: The project recognizes the need for community, not just around the individual AAC learner but also for families. This includes support from other families on the AAC journey, professionals, and local communities, creating a sense of shared experience and providing much-needed encouragement and credibility to families advocating for their loved ones.

 

Links from This Episode:

 

Stepping Into AAC: https://www.angelman.org/stepping-into-aac/ 

 

Eleven Labs: https://elevenlabs.io/

 

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