Next Steps: Gene Therapy for Dravet Syndrome - A Rare Epilepsy – Moran Rubinstein & Eric Kremer #02

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients!
If you haven't yet seen the first in this set of two episodes then check it out!
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More about Moran & Eric: 👇🏻
https://www.torierobinson.com/epilepsy-sparks-insights/moran-rubinstein-eric-kremer-02
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Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻
https://www.epilepsysparks.com/glossary
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Chapters 📖
00:00 Intro
00:37 How the therapy shall be used
02:16 Therapy for children and adults
03:05 Use in other epilepsies
04:32 Patents and alterations
05:17 Pharma companies
06:11 Safety: the long journey from mice to patients
07:17 Success, editing & retesting the therapy
08:01 Treating the cause rather than the symptoms
08:43 Where and when to inject the virus - an analogy
10:42 Relating as a patient without Dravet
12:02 Next steps with pharma & governments
14:13 Special thanks
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