In this heartfelt and uplifting episode, Tom returns as a regular co-host to share his powerful story of living with dementia for over seven years. Alongside Fran and the group, we dive into the real, everyday experiences of life after diagnosis—exploring the emotional challenges, shifting relationships, and surprising moments of joy that come with it. From tackling loneliness and fatigue to embracing new routines, social circles, and even carol-singing in July, this episode is full of honest r...
In this heartfelt and uplifting episode, Tom returns as a regular co-host to share his powerful story of living with dementia for over seven years. Alongside Fran and the group, we dive into the real, everyday experiences of life after diagnosis—exploring the emotional challenges, shifting relationships, and surprising moments of joy that come with it. From tackling loneliness and fatigue to embracing new routines, social circles, and even carol-singing in July, this episode is full of honest reflections, laughter, and practical tips. We cover everything from reminiscence therapy and staying active to adapting to changes in diet, sleep, and identity. Whether you’re navigating dementia yourself, supporting someone who is, or just curious to understand more, this conversation offers hope, connection, and proof that life with dementia can still be full of meaning—and even laughter.
Resources in this episode:
Organisations, Charities & Support Alzheimer’s Society Mentioned as a key support organization. https://www.alzheimers.org.uk/ Playlist for Life Referenced for music therapy and as an upcoming guest. https://www.playlistforlife.org.uk/ Sedgemoor Dementia Group Local dementia community group frequently discussed (no direct, unified link; may be local to Liverpool. More info here or add your specific group). Central Library Liverpool Dementia Group Saturday group referenced. https://www.liverpool.gov.uk/librarie... Dementia Action Alliance Referenced in context of advocacy/events. https://www.dementiaaction.org.uk/ Therapy & Advice Reminiscence Therapy Discussed as a beneficial therapy for people living with dementia. NHS Info on Reminiscence Therapy Media, Events, & Other References Matilda (Film) Referenced during discussion about cake. Matilda at IMDb Harry Worth (Comedian) Reference to an old UK comedian known for a specific shop window routine. Harry Worth: Wikipedia Classic Harry Worth Clip on YouTube Services Mentioned Primark Quiet Shopping Hour Providing dementia/autism-friendly shopping times. https://corporate.primark.com/en-gb/a... Morrisons Quiet Hour Also providing accessible shopping periods. https://my.morrisons.com/blog/morriso... Clinical Concepts Neuroplasticity Topic discussed as a brain health concept. Alzheimer’s Society: Neuroplasticity
00:00:07 – Introductions & Setting the Scene Welcoming Tom as a returning guest and new co-host, overview of the group's aim to provide support and positivity for those living with dementia.
00:03:11 – Life with Dementia: Staying Positive Sharing personal approaches to diagnosis, the shock, combatting loneliness, and the importance of social connections.
00:07:27 – Past Lives and Identity Talking about careers before diagnosis, loss of professional identity, and the value of sharing life stories.
00:12:29 – Reminiscence Therapy and Memory Introduction to reminiscence therapy, short-term vs long-term memory, and how past memories surface.
00:15:16 – Music, Dancing, and Staying Active Discussion about Dr. Ivan’s advice, benefits of dance, singing, and laughter even without formal therapy.
00:15:57 – Support Systems: Alzheimer’s Society & Navigators How the Alzheimer’s Society and dementia navigators help explain symptoms, support families, and reduce anxiety.
00:18:29 – Stress, Fatigue, and Coping Strategies Managing the impact of stress on symptoms, using rest, hobbies, and routines to cope with difficult days.
00:28:56 – Social Groups & Carers Recognition of carers, the importance of community groups like Sedgemoor, and the realities carers face.
00:33:41 – Humour, Acceptance & New Purpose How humour, perspective shift, and the podcast itself offer purpose and enjoyment despite challenges.
00:34:45 – Music Memories & Technology Using music (Playlist for Life, Alexa), how songs stick in the mind, and the practical use of reminders and prompts.
00:36:19 – Changes in Diet and Taste Discussion about changes in taste/smell, diet adaptations, cravings for sweet and spicy food.
00:43:01 – Maintaining Confidence & Activity Rebuilding confidence after diagnosis, staying active, practical solutions to day-to-day challenges.
00:52:44 – Daily Routines, Coping with Change Adapting routines, home adaptations (stairs, planning, navigation), and accidents resulting from symptoms.
01:00:04 – Understanding and Preventing Dementia Discussion on neuroplasticity, risk factors, doubts about preventability, and hopes for societal understanding.
01:05:00 – Reflections, Support, and Next Steps Personal reflections, podcast aims, advice for newly diagnosed, and plans for future episodes/guests.
