EP31: September Awareness Days, NORD Designates New Rare Disease Center, and Listener Voicemails

In this rare and relevant episode Kimberly delves into various awareness days and months in September. We also talk about upcoming webinars and conferences, share industry resources, and highlight the inspiring "Life After Diagnosis Day" follow-up available on The Disorder Channel.

 

Stay tuned for voicemails from our listeners, news about Weill Cornell Medicine and New York-Presbyterian Weill Cornell Medical Center, and San Diego-based Crinetics Pharmaceuticals' promising results in the development of an oral medication for acromegaly. So much to hear in one episode! 

 

Links ⬇️

http://dazzle4rare.net/awareness_days](http://dazzle4rare.net/awareness_days 
https://www.hopeforhh.org/get-involved/](https://www.hopeforhh.org/get-involved 
https://rarediseases.org/rare-diseases/usher-syndrom](https://rarediseases.org/rare-diseases/usher-syndrome 
https://www.childrenshospital.org/conditions/microvillus-inclusion-disease

https://rarediseases.org/event/nfed-advocacy-day/](https://rarediseases.org/event/nfed-advocacy-day 
https://globalgenes.org/event/rare-health-equity-forum/](https://globalgenes.org/event/rare-health-equity-forum

https://www.hlth.com/2023event 
https://mmpharmasciences.pathfactory.com/l/integrated-perspectives

https://news.weill.cornell.edu/news/2023/09/national-organization-for-rare-disorders-designates-weill-cornell-medicine-and-newyork

 

Reach Daniel De Fabio at daniel@rarediseasefilmfestival.com

 

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