EPISODE #174 | LILY COLLISON | ADDRESSING SPASTIC DIPLEGIA

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Lily Collison is the Author of Spastic Diplegia Bilateral Cerebral Palsy, an empowering and evidence-based guide for living a full life with spastic diplegia–bilateral cerebral palsy.

In this episode, Lily shares her story about being a parent of a child with Cerebral Palsy. From the moment her son Tommy was born, Lily knew something was not right from her newborn’s cry. She takes us on her journey from diagnosis to the amazing advancements in medicine, including an update about Tommy’s latest surgery. Here’s some additional information about Cerebral Palsy (CP).

CP is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia—also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. The book focuses on the motor problems—problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.

Visit: https://lilycollison.com for more information.

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