Episode 52: An Unprecedented Year in Review

This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for Autoimmune and Autoinflammatory Arthritis, as she gives our annual “Year End Review” reflection. In honor of this unprecedented year, this episode will not be the usual briefing on the annual accomplishments of the organization. That information is still available on our website at www.aiarthritis.org, and we will be publishing an annual report very soon.

The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders about solving problems facing the autoimmune and autoinflammatory arthritis community. We seek to improve communication, research, and education and ensure access to the best treatments possible by listening to all voices and perspectives. If 2020 has taught us anything, it should be that everyone can be facing the same set of conditions and have different needs and perspectives based on their lived experiences. We thank you for your support of the show and the organization and look forward to hearing your perspectives in the future.

 

Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!

 

If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.

 

JOIN TODAY! 

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).

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Show Notes: Episode 52 – “Unprecedented Year in Review”

 

00:52 - Tiffany welcomes listeners

01:12 - Today’s episode is a year end review for this unprecedented year

03:05 - Some things that are very common in our lives right now like masks and zoom happy hours were unheard of just a year ago

04:36 - Many people feel like others don’t understand their experience during the pandemic

05:39 - Tensions run high from the prolonged stress, economic strain, etc.

06:43 - AiArthritis will be putting out an annual report on our 2020 activities for those that want a detailed accounting of our organizational year in review

08:25 - AiArthritis patients struggles to connect with friends due to fatigue and pain, so normalizing zoom for socializing is a positive step for our community

08:45 - Hopefully the experience of the pandemic will allow others to understand what AiArthritis patients experience as part of their normal lives

09:40 - AiArthritis is focused on improving communication, research, and education and ensuring access to the best treatments possible by listening to all voices

10:05 - Tiffany thanks listeners for their support during this unprecedented year