AiArthritis Voices 360 Talk Show
Education
This week join your patient co-host Tiffany Westrich-Robertson, CEO of International Foundation for Autoimmune and Autoinflammatory Arthritis, as she gives our annual “Year End Review” reflection. In honor of this unprecedented year, this episode will not be the usual briefing on the annual accomplishments of the organization. That information is still available on our website at www.aiarthritis.org, and we will be publishing an annual report very soon.
The mission of AiArthritis is to elevate and center the patient voice in global conversations with all stakeholders about solving problems facing the autoimmune and autoinflammatory arthritis community. We seek to improve communication, research, and education and ensure access to the best treatments possible by listening to all voices and perspectives. If 2020 has taught us anything, it should be that everyone can be facing the same set of conditions and have different needs and perspectives based on their lived experiences. We thank you for your support of the show and the organization and look forward to hearing your perspectives in the future.
Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!
If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.
JOIN TODAY!
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@ifAiArthritis) or email us (podcast@aiarthritis.org).
Be sure to check out our top-rated show on Feedspot!
Show Notes: Episode 52 – “Unprecedented Year in Review”
00:52 - Tiffany welcomes listeners
01:12 - Today’s episode is a year end review for this unprecedented year
03:05 - Some things that are very common in our lives right now like masks and zoom happy hours were unheard of just a year ago
04:36 - Many people feel like others don’t understand their experience during the pandemic
05:39 - Tensions run high from the prolonged stress, economic strain, etc.
06:43 - AiArthritis will be putting out an annual report on our 2020 activities for those that want a detailed accounting of our organizational year in review
08:25 - AiArthritis patients struggles to connect with friends due to fatigue and pain, so normalizing zoom for socializing is a positive step for our community
08:45 - Hopefully the experience of the pandemic will allow others to understand what AiArthritis patients experience as part of their normal lives
09:40 - AiArthritis is focused on improving communication, research, and education and ensuring access to the best treatments possible by listening to all voices
10:05 - Tiffany thanks listeners for their support during this unprecedented year
Episode 59: Learned Experiences- Let the Evolution Continue!
Episode 58: Diet, Research, & AiArthritis - an ACR Special Presentation
Episode 57: RheumyRounds Special Airing - COVID-19 & Vaccinations Communication, Education, & Shared-Decision Making
Minisode Special: Decision Making w/ Vaccinations & Special Rheumy Rounds Announcement!
Episode 55: Patients Weigh In What‘s in a Name - the Spondy Evolution
Episode 54 COVID19 & AiArthritis Special Series: Vaccine questions & mixed messages
Episode 51: Oh Mama! Special Series Episode 2 - Breastfeeding with AiArthritis Diseases
Episode 50: Grit, Gratitude and Grace: A positive mindset can improve pain and resilience
Episode 49: Your disease, my disease, Still‘s disease - what are doctors learning to expedite diagnosis?
Episode 48: Support: It’s not so simple. Diverse needs for difference experiences.
Episode 47: Teamwork makes the dreamwork: AiArthritis WINS Best Team Performance 2020
Episode 46: The ”A” Word
Episode 45: This is for all the marbles
Episode 44: Patient-Reported Symptoms - Connecting the dots to improve education
Episode 43: Support - It‘s a Family Affair
Episode 42: Treat to Target Today with Complex Diseases - Is it Possible?
Episode 41: Biomarkers - DIagnosis, Disease Management, & even PREVENTION?!
Episode 40 Research at a Glance - Posters & Abstracts: Patient reviewers, here we come!
Episode 39: Patient Engagement in Research: the OMERACT Experience
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