Ep 102: Navigating the Patient Journey: From Early Diagnosis to Remission

In this episode of AiArthritis Voices 360, co-hosts Leila and Eileen discuss a project focused on organizing essential resources for patients navigating the AiArthritis journey, from undiagnosed symptoms to remission. They share their personal experiences living with lupus and rheumatoid arthritis, exploring the complexities of managing chronic illness and the challenges of early diagnosis. Tune in to learn about AiArthritis’s new online social community and how you can contribute your story and help develop more resources for patients. This episode is perfect for patients and caregivers seeking guidance and support on their health journey.

 

Share your ideas on resources that we can add to the patient journey by emailing us at info@aiarthritis.org, submit your patient story on each different section of the patient journey and join our online social community!

Episode Highlights

• A breakdown of the six stages of the patient journey and how resources are organized.
• Personal stories from Leila and Eileen on living with AiArthritis diseases.
• The importance of early diagnosis and how it affects long-term outcomes.
• Strategies for caregiver support and understanding comorbidities.
• Learn how to contribute your story or join the new AiArthritis social community.

Resources & Links:

• Check out our patient resources: www.aiarthritis.org/patientjourney

Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp

Donate to Support the Show: https://www.aiarthritis.org/donate 

Follow AiArthritis on all social media platforms @IFAiArthritis

Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE

 

 

Connect with our Co-Hosts:

 

• Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. 

 

Connect with Leila:

• Tiktok: @Lupuslifestyle.lei

 

• Eileen is a rheumatoid arthritis patient advocate from Vancouver Canada. She volunteers with the Arthritis Research Canada patient advisory board and the Canadian Institute of Health Research - Institute of Musculoskeletal Health and Arthritis patient engagement research ambassador, among others. When not advocating she is writing about her experience with arthritis through Creaky Joints, Healthline, Chronic Eileen or can be found being a mom to her son Jacob.

 

Connect with Eileen:

• ChronicEileen