Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Mark Steier is a talented musician. His battle with sarcoidosis has dominated his life to the point he wrote and performed a song, called Zombie to describe the battle.
One stanza goes as follows: "Learn to suffer You’ll feel pain someday And learn endurance - Your strength will fade away
Dead man walking Trying to keep up the pace
Dead man walking
Counting down the days."
I can tell you that Mark's haunting melody is catchy -- but more than that it resonated with me -- as I'm sure it will with you. In this episode of the Sarc Fighter Podcast, Mark describes his fight with sarc and describes the feelings and emotions that led him to the lyrics. We will listen to the song in pieces, and then at the end -- in its entirety.
More than that, Mark is donating the proceeds from Zombie to the Foundation for Sarcoidosis Research.
If you would like to donate in honor of his efforts, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent to the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
May I suggest that you make a donation and also share the links above on your social media? The more people who know about Sarcoidosis, the easier it will be to raise funds to fight the disease. Zombie takes our message and puts it in easily consumable terms anyone can understand and relate to.
I've talked to so many people already, and I feel like some portion of each person's story is represented in this song. For some reason, I just think this song is important.
Meanwhile, if you would like to contact me all of my info is below.
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Episode 121 | Wade Tomlinson needed a lung transplant
Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real trouble
Episode 119 | Jessica Soules deals with Neurosarcoidosis
Episode 118 | Mark Steier -- Who wrote the Sarc Fighter theme song has an unpdate, and his wife Caeleigh goes long for FSR
Episode 117 | Renwick Brutus tried to write his own insurance policy. But sarcoidosis intervened.
Episode 116 | Xentria has a drug - XTMAB-16 that shows promise in fighting Sarcoidosis
Episode 115 | Sarc Fighter Andrea Maione has both sarcoidosis and long COVID. It's no party.
Episode 114 | Influencer Jonathan Carlin uses YouTube and other social media for an FSR Fundraiser
Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Episode 110 | Walgreens is helping to fight Sarcoidosis
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Episode 106 | Rachelle DeMaria just wants to launch her life
Episode 104 | John Martin thought it was time to get his affairs in order.
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Create your
podcast in
minutes
It is Free
Good Nurse Bad Nurse
The Relaxback UK Show
On Call With Dr. Anselm Anyoha
The Doctor’s Farmacy with Mark Hyman, M.D.
Well Beyond Medicine: The Nemours Children’s Health Podcast