Episode 114: Beacon for Rare Diseases

This week: I chat with a Cambridge-based charity which supports patient groups formed by those who have a family member diagnosed with a rare condition.

We'll hear from Beacon CEO Rick Thompson and Digital Resources Manager Blayne Baker-Garwood, as well as co-founder of the Timothy Syndrome Alliance - which has been supported by Beacon - Sophie Muir.  It's a truly wonderful charity who provide hope and lift up those who are lifting up each other.

Find out more about Beacon for Rare Diseases here.

You can find out about the Timothy Syndrome Alliance here.

Contact Eastern Promise at podcast@easternpromise.org.uk or visit easternpromise.org.uk.

Eastern Promise is proud to be supported by Mills & Reeve.