“I’m afraid to Hope again…” & Melissa – Reflections on ENDD at CHOP, #UFDCure Cannonball, Scramble - #S10e119

My trip summary to CHOP.

Melissa and her family are remarkable. “Doing this for the next generation.”

 

Why are we afraid to hope?  Because fear is winning.  Everything comes from Fear or Love.  Focus on the love.  Feed that one.

https://www.demellospirituality.com/love-or-fear/

https://www.urbanbalance.com/the-story-of-two-wolves/ 

 

#UFDCure Cannonball - October 4-6

$128,075.83 so far at 83.6%

https://www.youtube.com/watch?v=ilnPIwVy6oY 

https://www.syngapresearchfund.org/cannonball
https://x.com/UFDTech/status/1711488218636357818?s=20 

 

Scramble - October 7, 2023

Have you read the Syngap Story on Julie yet? 

 

52 Days until the Conference - Sign up by Halloween - We need head counts.

Registration & Hotels 

Conference and Wild Type Shirts: 

Share your time and blood too!
Sign up for ciitizen! Sign up for CHOP! Volunteer!

Give us 5 stars everywhere.  Like Apple podcasts!

 

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Episode 119 of #Syngap10 - October 9, 2023

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat