Ep42 Pulse 123: Awareness Ideas, Prader Silly, Adults with PWS Spotlights, In Memory of Jim Gardner

The latest in PWSA | USA events and PWS news in research, family support, and advocacy. 

24 Hour Crisis Line: 941-312-0400

PWS Awareness Month - Prader-Willi Syndrome Association | USA

United in Hope Conference

Home - 2025 United in Hope PWS Conference

High-Level 2025 Conference Schedule Family Conference

Clinical and Scientific Program

High-Level 2025 Conference Schedule Professional Providers

50th Anniversary

PWSA Memory: 1995_Vol-XX-N1-Feb-1995.pdf

Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA

Events

The Zuzu Secret Novel for Elementary and Middle Grade - Beardies, Prader-Willis Syndrome, Baseball — Miriam Chernick - Author & Educator

Prader Silly: A Night of Rare Laughs - Campaign

bipocpws@gmail.com

Fundraisers

Lyra Mills's fundraising page for Prader-Willi Syndrome Association

Filling Cups with PWS Awareness - Prader-Willi Syndrome Association | USA

United We Brunch - Campaign

PWSA Fundraising Pages - Campaign

Spotlight on Hope

Spotlight on Hope: Lydia and Dalyas Dreamers - Prader-Willi Syndrome Association | USA

Share Your Story - Prader-Willi Syndrome Association | USA

Advocacy

PWSA Advocates Represent Disability Needs and Rights in DC - Prader-Willi Syndrome Association | USA

PWS Awareness Month Proclamation Toolkit

advocacy@pwsausa.org

etowle@pwsausa.org

Family Support

Adults with PWS Advisory Board Spotlight: Conor Heybach - Prader-Willi Syndrome Association | USA

PWSA | USA Family Support Webinar: Creating Financial Security for a Loved One with PWS

Family Resource Program - Parents/Caregiver Focus Groups

Family Resource Program - Sibling Focus Groups

Ask Nurse Lynn: Genetics and Weight Gain - Prader-Willi Syndrome Association | USA

Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA

Research

Aardvark’s HERO Clinical Trial Webinar: Webinar Registration - Zoom

Home | Hero Trial

Dr. Pacha’s Educational Trends Survey: Caregiver Screener | QuestionPro Survey

Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA

Request for Prader-Willi Syndrome Research Grant Applications - Prader-Willi Syndrome Association | USA

Announcements/Resource Spotlight

GI-Algorithm-Chart-2022.pdf