Understanding Dementia: Gina Awad on Advocacy, Rare Dementias, and Carer Support

In this episode of Able to Care, Andy Baker is joined by Gina Awad, an award-winning dementia advocate and founder of Exeter Dementia Action Alliance. Gina shares her journey in dementia advocacy, her work supporting carers, and her insights into rare dementias. This conversation highlights the importance of community awareness, personalised support, and the challenges carers face.

Whether you're a caregiver, a professional working in dementia care, or someone looking to understand the condition better, this episode offers invaluable insights into making society more dementia-friendly.

Sponsor

This episode is proudly sponsored by Carers Card UK, helping unpaid carers access discounts, resources, and support. Get yours today using our exclusive Able to Care promo code at CarersCardUK.com.

Resources Mentioned

• Exeter Dementia Action Alliance – Website
• The Rare Dementia Support Network – Website
• Gina Awad’s Work & Publications – LinkedIn
• Dementia UK – Website

Key Messages from This Episode

1. Dementia care is more than memory loss – Understanding the diverse symptoms and impact of different types of dementia is crucial for providing effective support.
2. Community matters – Building dementia-friendly communities helps those living with dementia and their caregivers feel understood and supported.
3. Supporting carers is vital – Carers play a critical role in dementia care and need access to resources, respite, and emotional support.

Key Timestamps

📌 [00:00] – Introduction to the episode and guest, Gina Awad
📌 [03:15] – What inspired Gina to become a dementia advocate
📌 [08:40] – The importance of dementia-friendly communities
📌 [14:20] – Understanding rare dementias and their unique challenges
📌 [20:05] – The emotional toll of caregiving and how to offer better support
📌 [27:50] – Practical tips for carers navigating the healthcare system
📌 [33:10] – Why public awareness of dementia needs to improve
📌 [39:45] – The work of the Exeter Dementia Action Alliance
📌 [45:30] – Gina’s top recommended resources for carers and families
📌 [52:00] – How businesses can become more dementia-inclusive
📌 [58:15] – Gina’s advice for families who have just received a dementia diagnosis
📌 [1:05:00] – Final reflections and where to find more information

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