Leanne Greene & Alex Gude - Judging capacity in dementia studies

2022-03-24

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Leanne Greene narrates the blog written by herself and colleague Alex Gude written for the Dementia Researcher website. Current NIHR guidance advocates that research should strive to improve the inclusion of individuals with dementia, including those who lack capacity (i.e. the ability to make one’s own decisions). Despite this guidance, D-PACT is one of few studies actively including adults who lack capacity through an innovative ‘inclusive recruitment pathway’ and the u...

Leanne Greene narrates the blog written by herself and colleague Alex Gude written for the Dementia Researcher website.

Current NIHR guidance advocates that research should strive to improve the inclusion of individuals with dementia, including those who lack capacity (i.e. the ability to make one’s own decisions). Despite this guidance, D-PACT is one of few studies actively including adults who lack capacity through an innovative ‘inclusive recruitment pathway’ and the use of consultees.

In this blog Leanne and Alex how D-PACT went about developing a new approach to addressing capasity, and lessons learned from using their new pathway and guidance.

Find the original text, and narration here on our website.

https://www.dementiaresearcher.nihr.ac.uk/guest-blog-judging-capacity-in-dementia-studies-insights-from-face-to-face-and-remote-recruitment/

Leanne Greene is a Programme Manager at University of Exeter. With a background is in neuropsychology, Leanne spent time as an assistant psychologist in the NHS, including working on a specialist dementia ward offering assessment and treatment of organic mental health problems with dementia. Leanee has worked on a number of studies including Dementia- PersonAlised Care Team (D-PACT) project, which aims to develop and evaluate a system for dementia support based in general practice. She is currently, working on developing and evaluating a primary care TaIlored ManagEment of Sleep (TIMES) tool for people living with dementia or mild cognitive impairment.

Alex Gude is a Research Assistant at University of Plymouth. Having worked as a social worker with children and families for 10 years, Alex moved into research in 2016 and has worked on a number of projects as part of the Community and Primary Care Research Group at the University of Plymouth. All the projects she has chosen to work on are aimed at improving the mental health and wellbeing of the participants involved. Alex has a partner and two daughters, who are 11 and 14, who all keep her on her toes.

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Enjoy listening? We're always looking for new bloggers, drop us a line. http://www.dementiaresearcher.nihr.ac.uk

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