In this final episode of our Young Onset Dementia series, guest host Jillian McConnell speaks with Dr. Mario Masellis, Associate scientist and Clinician-scientist with the Hurvitz Brain Sciences Research Program, Sunnybrook Research Institute & Sunnybrook Health Sciences Centre; Assistant professor, neurology, department of medicine, University of Toronto and Research scientist, Centre for Addiction and Mental Health. Jillian and Dr. Masellis discuss what genetic testing looks like for someone who has a close family relative that is living with Young Onset dementia, how testing for Young onset dementia is different from other diseases, who is a good candidate for genetic testing, and the implications of deciding to test or decide not to test for Young Onset dementia.
Resources:
"It Started with Oma"
Le rôle important des aidants et des ressources communautaires pour les personnes atteintes de troubles neurocognitifs majeurs.
Esprit en action
Mind over Matter: Game Changer
Circle of Music in Kitchener-Waterloo
L’importance de la communauté
Conversations That Matter: Talking About Dying and Dementia
Les defis de la proche aidance a distance
L’approche par le plaisir
Vivre le moment present et profiter de la vie
Dying & Dementia: Let’s Talk About It
Demystifying Dying: Stories from a Death Doula
Dementia and Indigenous Communities Part 2: A cultural perspective of dementia and dementia care
Taking it to the Streets: Reimagining Dementia
Dementia and Indigenous Communities Part 1: A cultural perspective of dementia and dementia care
Ruth and Maggie’s Story
2SLGBTQI & Dementia:From Research to Action
Modèles novateurs de résidences pour aînés vivant avec un trouble neurocognitif majeur: Conversation avec le professeur Philippe Voyer
Rainbow Wing in LTC and Emotion Based Care for 2SLGBTQ Residents
Les défis de la proche aidance à distance
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