Changing our World with Hannah Deacon | S4 | E30

Join Rachel, Sarah and Lucy as we celebrate those people who change the world, be it campaigning for the right to medical treatment, supporting other parents, breaking down barriers, or just making a nuisance of themselves to get the voices of disabled people heard.

On this week’s episode we open up by reflecting on some of the world changers we know*, and reflect on why and how this is different for the disability community.

Rachel is then joined by Hannah Deacon, whose dedication to campaigning for patients' rights succeeded when the law changed on 1 November 2018, which led to cannabis becoming legal as a medical treatment. Her successful campaign on behalf of son Alfie Dingley, who lives with a rare and severe form of epilepsy, led to his doctors receiving the first schedule one license to prescribe whole-plant cannabis in the UK.

You can find more about Hannah and her work at her website.

*As promised - Sarah’s World Changers:

• Lynne Elwell who  works with Julie Stanfield who is the CEO at In Control and developed Partners In Policy Making
• Jayne Leeson - CEO at  Changing Our Lives
• Lynne James Jenkinson - CEO at North West Training and Development Team  (NWTDT)  also a parent to many including an amazing young woman with Downs Syndrome.
• Robert Punton - poet and disability rights campaigner, who Sarah Met through  The Alliance for Inclusive Education
• Joe Whittaker - Joe died a couple of years ago but was a passionate campaigner and all round incredible human. He was a lecturer at Bolton uni and included MANY people who would not have had access to higher education without him.
• Martin Routledge - convener at  Social Care Future and an EXCELLENT Elvis impersonator
• Janet Cobb - started the learning disability email network many many years ago. Was at NWTDT and worked with Lynne Elwell for a long time
• Dave Hingsburger- one of the most influential people I have ever heard speak -Friends Not Family
• Samantha Clarke - Learning Disability England
• Debra Moore  - first met when she was the health lead for Valuing People. Now provides consultancy. She is bloody brilliant and well worth connecting with
• Helen Laverty - started  Positive Choices many years ago. 

The Trio also discuss Single Case Experimental Design which you can find more about here or by watching this video.

Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here.

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