Ep20 Pulse 112: Angel Drive, Georgia Advocacy, Growth Hormone, Clinical Trial Journey

The latest in PWSA | USA events and PWS news. 

LINKS

Donate: Angel Drive 2024 - Prader-Willi Syndrome Association | USA

PWSA | USA Hope in Action: Grandparents’ Stories of Love and Resilience

Share your Spotlight on Hope: Share Your Story - Prader-Willi Syndrome Association | USA

2025 United in Hope PWS Conference

Submit to the Rare Aware Art Share: PWS Rare Aware Art Share - Prader-Willi Syndrome Association | USA

Rare Aware Art Share Gallery: Rare Aware Art Share Portfolio 2024 - Prader-Willi Syndrome Association | USA

BIPOC Affinity Group: BIPOCPWS@gmail.​com

Joining Georgia Advocacy: dlantz@pwsausa.​org

Conway Family Soleno video: A Family’s Journey Managing Prader-Willi Syndrome

Rare-Pediatric-Disease-Priority-Review-Voucher-Program-Reauthorization-Community-Letter-1.pdf

The (Sometimes Messy) Details of Life in a Clinical Trial - Prader-Willi Syndrome Association | USA

Ask Nurse Lynn: When to Start Growth Hormone - Prader-Willi Syndrome Association | USA

Family Support Webinars YouTube Library: 2024 PWSA | USA Family Support Webinars - YouTube

Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA

Abstracts for Clinical and Scientific Program: Conference 2025 - IPWSO

Register for ECHO 4 PWS webinar "Orthopedics and PWS": Meeting Registration - Zoom

Project ECHO: Project Echo - Prader-Willi Syndrome Association | USA

Make an Impact - PWSA USA