Rare Disease Advocacy and Burnout

When I first became involved in advocacy, I was passionate. I was motivated. But somewhere along the way, I lost that passion. Life happened. And I burned out.

In this episode, I reflect on how I arrived at a state of absolute burnout, how I had to take a break, and how I eventually found my way back to advocacy. I am now more passionate and motivated than ever in my advocacy work, and this time around, I am focused on prioritizing my mental health.

About Never Give Up: A Rare Disease Podcast

This is a storytelling podcast. I'm not interviewing guests or telling news that affects our community. Other podcasts do that extremely well. I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up.

Contact Kevin Alexander

Website: PKUJournal.com

Instagram: @kevinalexander_pku

Facebook: @pkujournal

Email: kevinalexander@pkujournal.com