Your Story Matters

"Your story matters".

I say that all the time. But do I really believe it? If I did, then why did I stop sharing my daily routines related to my rare disease years ago? Since so much of my life revolves around PKU advocacy, then why don't I share my personal diet and routines?

I reflect on that in this episode. And will keep trying to open up, be authentic, and feel free to share who I really am, both on this podcast and on social media.

About Never Give Up: A Rare Disease Podcast

This is a storytelling podcast. It's an exploration of the intersection of life, mental health, and rare disease. I just want to tell you some stories. Stories about hope. Perseverance. Self-worth. Self-care. Stories that hopefully inspire you to keep going. And to never, never, never give up.

Contact Kevin Alexander

Website: PKUJournal.com

Instagram: @kevinalexander_pku

Facebook: @pkujournal

LinkedIn: Kevin Alexander

Email: kevinalexander@pkujournal.com