When Alice Urbino was a young teenager she got the flu and never got better. Her mother - desperate for her daughter to recover - paid for what she thought was a legitimate treatment -- even though young Alice could plainly see the ‘lightning process’ was based on pseudoscience.
Nevertheless, Alice was pressured to partake in a cult like atmosphere with absurd rituals that amounted to brain washing. Alice was made to believe that she chose to be sick, and that even expressing feelings of nausea or fatigue were signs that she wasn’t trying hard enough and that she had the wrong attitude and that’s why she was still sick.
Not surprisingly, young Alice was brain washed and internalized the blame and shame and soon became depressed and started hating herself. For years, belief in this ‘treatment’ affected Alice’s mental health and belief in herself and the physical symptoms she experienced.
In our interview, Alice tells us how she overcame the internalized gaslighting caused by the lightning process, and to warn us about what she learned about the lightning process’s infamous founder Phil Parker, who professes to have the “ability to step into other people’s bodies...to assist them in their healing”. Parker - who is often called out as a charlatan on social media - has a long history of financially preying on the sick, vulnerable and desperate.
Link to Phil Parker’s old prototype page: https://t.co/VNjPRdxjjd?amp=1
Connect with Alice Urbino:
twitter and instagram are both @aliceurbino
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Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Liz Perloff: Dislocated foot bone missed for years leads to medical gaslighting for years
Daria Oller: Physical Therapist with Long Covid - what she was taught was wrong
MaryAnne Martin-Smith: Given death rites 3 times - how simple surgery went so wrong
Melinda Maxwell: Craniocervical instability -- decades of suffering before diagnosis
Jonah McGarva: Long Covid - Politically invisibilized and medically gaslighted
Tracy Fossum: Chronic pain, chronic gaslighting, chronic bias and a heart attack
Melissa Shiff: Her life intersects with wife murdering surgeon, medical error and human rights
Terri Lewis PhD: Medicine’s Problem: Drive-by Transactional Medicine
Miranda Levy: Psychiatric Safari - A journalist’s experience with psychiatry and their medications
Beau Tiffany: The Medical Care Racket - 2 damaging surgeries for illnesses he didn’t have
Jenna Payne: Stupid Stuff Doctors Say: "You’re depressed because your unmarried and childless"
Casey Steidle: How is this happening? MRI Gadolinium toxicity - life consuming, life ruining
Donald Lepp: Heart Broken - A family’s journey through medical help, harm and mayhem
Dr Susan Cunliffe: Escaping Psychiatry and ECT - A Physician’s Experience
Mackenzie Doyle: 20 years to get correct diagnosis - mast cell activation syndrome (MCAS)
Charis Hill: Accused of fusing own back bones - Post Traumatic Growth - from Athlete to Advocate
Candia McCullough: Sliced to bits: illegal mesh surgically implanted without consent
Rachel Winters (part 2): Accutane Injury -- Doubly Deceived by Medicine and Family
Rachel Winters (part 1): Medical Betrayal and a Family of Physicians -- Decision Based Evidence Making
Chandra Pasma: Long Haul COVID - Will this end for my family?
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