John and Cindy McCaffrey's motto is “Have a good day, every day”. In this episode of our Young Onset Dementia series, guest host, Kathy Hickman of the brainXchange and Alzheimer Society of Ontario talks with them about their experiences of living with and caring for someone with young-onset dementia, how they have built a sense of community and continue to maintain a positive attitude by living in the moment.
John and Cindy discuss how they took action when they couldn’t find the “right” supports for someone living with young-onset dementia by creating a program called YouQuest. YouQuest focuses on providing intentional days for people living with young onset dementia based on providing real-life experiences, all guided by its participants.
Resources
YouQuest - https://youquest.ca/
Online Support Group for care partners of people with young-onset Dementia – Contact cindy@youquest.ca
Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010
The Association for Frontotemporal Dementia - https://www.theaftd.org
brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia
Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia
brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia
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Episode 46: Young-Onset Dementia: changing the narrative
Episode 45- Communication through improv- Arts 7
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Young Onset Dementia: One family’s story on how a diagnosis impacted their lives- Season 4, Episode 42
Pandémie et mesures sanitaires : un défi pour les personnes atteintes de troubles neuro-cognitifs, leur entourage et les intervenants
Arts and Dementia Series- Healing through the arts: The journeys of one woman and a son and his father
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Living Fully & Meaningfully, Season 3, Episode 38
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Hearts and the Arts, Season 3, Episode #36
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