John and Cindy McCaffrey's motto is “Have a good day, every day”. In this episode of our Young Onset Dementia series, guest host, Kathy Hickman of the brainXchange and Alzheimer Society of Ontario talks with them about their experiences of living with and caring for someone with young-onset dementia, how they have built a sense of community and continue to maintain a positive attitude by living in the moment.
John and Cindy discuss how they took action when they couldn’t find the “right” supports for someone living with young-onset dementia by creating a program called YouQuest. YouQuest focuses on providing intentional days for people living with young onset dementia based on providing real-life experiences, all guided by its participants.
Resources
YouQuest - https://youquest.ca/
Online Support Group for care partners of people with young-onset Dementia – Contact cindy@youquest.ca
Frontotemporal Dementia (FTD) Durham Support Group - https://m.facebook.com/groups/221301621683010
The Association for Frontotemporal Dementia - https://www.theaftd.org
brainXchange, Frontotemporal Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Dementias-Rare-forms-of-/Frontotemporal-Dementia
Alzheimer Society of Canada, Young Onset Dementia - https://alzheimer.ca/en/about-dementia/other-types-dementia/young-onset-dementia
brainXchange, Young Onset Dementia Resource Page - https://brainxchange.ca/Public/Resource-Centre-Topics-A-to-Z/Young-Onset-Dementia
What We Do Here Counts: Sharing stories of spirituality and caregiving, Season 3, Episode 31
COVID-19:Being a Caregiver, Season 3- Episode 30
Culture, diversity & Spirituality - Season 3, Episode 29
Up Next! Season 3, Episode 28
Spiritual Care: Filling their Souls- #2 in our Spirituality Series, Season 3, Episode 27
Live for Today! Season 3, Episode 26
Being fully alive: How spirituality endures - Season 3, Episode 25
Happily Ever Older- Episode 24
A Pioneering Partnership
Changing Roles in Dementia Research: From subjects to participants: Season 3, Episode 22
Choices Season 3 Episode 21
Grassroots Changemakers Season 3, Episode 21
Dementia Friendly Communities: Season 3, Episode 19
Changing and Adapting: Reflection, Reframing and Reimagining Season 3, Episode 18
Changing and Adapting: Be Prepared
MAID & Bill C-7 – Medical Assistance in Dying
For This I am Grateful: Living with Dementia
Transitions– Looking Back and Looking Ahead
Transitions: Shared Care in Dementia
Transitions- A Rural Dementia Resource for rural communities
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