The ALS Registry is a powerful tool to learn more about who has ALS in the United States and develop appropriate research proposals with different populations of people. In order for the Registry to work, people with ALS need to participate in a series of surveys. In this podcast, Jen Hjelle, the Executive Director of The ALS Association MN/ND/SD Chapter talks about their outreach to ALS families for the registry in more rural areas of the country and why they see the Registry as a valuable tool to end ALS.
Learn more about the fight against ALS, research, and participating in advocacy for initiatives like the Registry at www.alsa.org
Episode 64 Cory Walts
Episode 63 Bryan Cutler and Ellyn Phillips
Episode 62 with Tom Giordano
Episode 61 Chris Scofield and Scott Israel
Episode 60 Dan Quinn
Episode 59 Christina Martin
Episode 58 Jill Cawthern
Episode 57 with Jen LaRegina, RN
Episode 56 Jamey PIggott
Episode 55 - Thomas Heyl
Episode 54 Bob Grimes
Episode 53 with Jill Kaplan and Maryellen Bowers
Episode 51 Phil Avillo
Episode 50 Gail Houseman Kelly Slipakoff
Episode 49 with Sarah Brendle
Episode 48 with Steve Hildebrand
Episode 47 with Karen Stull
Episode 47 with Meg Dresher
Episode 46 with Andy Miller
Episode 45 with Alexander and Noah Snyder-Mackler
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