The ALS Registry is a powerful tool to learn more about who has ALS in the United States and develop appropriate research proposals with different populations of people. In order for the Registry to work, people with ALS need to participate in a series of surveys. In this podcast, Jen Hjelle, the Executive Director of The ALS Association MN/ND/SD Chapter talks about their outreach to ALS families for the registry in more rural areas of the country and why they see the Registry as a valuable tool to end ALS.
Learn more about the fight against ALS, research, and participating in advocacy for initiatives like the Registry at www.alsa.org
Episode 44 Jim Pinciotti
Episode 43 Anne Cooney
Episode 42 with the Hemsing Family
Episode 41 with Kristen Colby
Episode 40 Paul Miller
Episode 39 with Lauren Stevenson Yacina
Episode 38 with Debbie Ihde, Andrew Geronimo, and Donna Cleary
Episode 37 with Brenda Edelman
Episode 36 with Philly Philms
Episode 35 Alisa Brownlee on Emergency Preparedness
Episode 34 with Wendy Barnes, LSW
Episode 33 with Brianne and Tim from Donn's Dash
Episode 32 with Sue Walsh
Episode 31 - Tracy, Ali, and Emma of BAYADA Home Health Care
Episode 30 ALS and FTD with Judy Lyter and Travis Haines
Episode 29 Dr James Connor
Episode 28 with Allison Lardner
Episode 27 with Chris Martin
Episode 26 Jeanette Beck and Kerry Durkan on Hershey Walk to Defeat ALS
Episode 25 BCI with Melanie Fried Oken
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