Episode 3 Patient Frank Rivera bares his soul.

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine.  "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast.  Frank was one a runner.  A good one, turning a marathon time of 2:30 and running under a 4-minute mile.  Now, he walks with a cane.  Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis.  He organizes a walk on Long Island.  He's just published a book.  He even worked to get a billboard in New York's Times Square to fight Sarcoidosis.  I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research.

Frank's Walk https://www.ticketor.com/sarcoidosisofli/event/6th-annual-sarcoidosis-of-long-island-awareness-walk-187357

Frank's website, Sarcoidosis of Long Island  https://www.sarcoidosisofli.org/

Buy Frank's book:  https://www.amazon.com/Walking-Silent-Pain-Autobiography-Resilience/dp/B084QM4ZFV/ref=sr_1_1?crid=H7OUADZISLMH&keywords=walking+in+silent+pain&qid=1581713780&s=books&sprefix=walking+in+silent+pain%2Cstripbooks%2C160&sr=1-1&pldnSite=1

Other mentions from the Podcast

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

FSR Summits 2020  https://www.stopsarcoidosis.org/patient-summits/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  sarcfighter@gmail.com

Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/