Health & Fitness:Medicine
Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine. "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast. Frank was one a runner. A good one, turning a marathon time of 2:30 and running under a 4-minute mile. Now, he walks with a cane. Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis. He organizes a walk on Long Island. He's just published a book. He even worked to get a billboard in New York's Times Square to fight Sarcoidosis. I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research.
Frank's Walk https://www.ticketor.com/sarcoidosisofli/event/6th-annual-sarcoidosis-of-long-island-awareness-walk-187357
Frank's website, Sarcoidosis of Long Island https://www.sarcoidosisofli.org/
Buy Frank's book: https://www.amazon.com/Walking-Silent-Pain-Autobiography-Resilience/dp/B084QM4ZFV/ref=sr_1_1?crid=H7OUADZISLMH&keywords=walking+in+silent+pain&qid=1581713780&s=books&sprefix=walking+in+silent+pain%2Cstripbooks%2C160&sr=1-1&pldnSite=1
Other mentions from the Podcast
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me firstname.lastname@example.org
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Episode 33 | John Riffs on an encounter with a Doc who is not Sarc Aware!
Episode 32 | April is Sarcoidosis Awareness month! Tricha Shivas tells us how to fight back!
Episode 31 Susan Bassi's Life slowed to a crawl when Sarcoidosis made its appearance.
Episode 30 Kevin McDevitt's sarcoidosis spread from his finger ... to his heart!
Episode 29 Susie Torres fights for diagnosis as she battles Sarc and other illnessess. And - I explore the anti-inflammatory Elimination Diet
Episode 28 Sarc Fighter Andrena Johnson is making a Sacroidosis Documentary
Episode 27 Diet and CBD - Can they be effective? Ryan Norenberg offers proof.
Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.
Episode 25 Tracy Bawtinheimer was a world traveling executive until...
Episode 24 Sarc Fighter Frank Rivera fights long Covid-19
Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.
Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research
Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD
Episode 20 Mark Landiak was hiking the Grand Canyon, when ...
Episode 19 Desiree was a cover girl for health ... until.
Episode 18 Want to Feel Better? Mindy Buchanan talks today about the November FSR Summit and how it will help.
Episode 17 aTyr Pharma CEO Sanjay Shukla talks about how a new drug could be the answer for many sarc fighters!
Episode 16 Mary Morlino Fights Back After Sarc Knocks Her Down!
Episode 15 Reg Alexander Needed a New Heart
Episode 14 Barbara Mouradian Fights a two front battle with Sarc and still swims with sharks!
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