Episode 111: Babies With Kidney Disease: A Mother’s Experience of Navigating Uncertainty

Content warning: This episode contains discussions of a sensitive nature, including the medical management of abortion.

In this moving episode, Rajinder shares her journey as a parent of a child with CKD, starting from a complicated pregnancy to facing the challenges of a son with failing kidneys. The lack of support and empathy during difficult pregnancies is discussed, highlighting the need for better emotional guidance during such times. Rajinder and her husband navigated tough decisions to give their baby the best chance at life despite medical team dismissal. The traumatic birth experience and the subsequent NICU journey filled with uncertainty and fear are detailed, showcasing the family's strength in facing their baby's health struggles. Despite the challenges, Milo showed resilience in coping with dialysis from a young age. This episode sheds light on the importance of support and understanding in navigating complex pregnancies and health challenges.

 

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infoKID provides information for parents and carers about kidney conditions in babies, children and young people.

 

https://infokid.org.uk/

 

If you were affected by any of the issues raised in this episode contact:

Kidney Care UK

 

•           Website: www.kidneycarekuk.org

•           Email: info@kidneycareuk.org

•           Tel: 01420 541 424

•           Facebook: www.facebook.com/kidneycareuk.org

•           Instagram: @kidneycareuk

•           YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A

 

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Disclaimer: The views and opinions expressed by Guests on this podcast are those of the Guest and do not necessarily reflect the official policy or position of Dee Moore or Kidney Care UK. Any content provided by our Guests are of their opinion, and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything.