Jodi shares her story about her teenage son who was born with congenital heart disease.
Jodi shares her experience about when her son was first diagnosed with CHD.
She talks about the delivery and the first two heart surgeries.
Jodi talks about the overwhelming stress that she experienced leading up to her son's Fontan heart surgery.
Moreover, she talks about how her husband handled the stress of their son's Fontan surgery and how important it is for fathers to have their own support group.
Plus, Jodi talks about life after her son's Fontan surgery and how she realized that congenital heart disease for single ventricular children and their parents is a life long journey.
She also talks about the long-term quality of life for children after the Fontan surgery.
Moreover, Jodi discusses the importance of research for congenital heart disease and identifies specific trials that are being done by different organizations.
Finally, Jodi shares a valuable life lesson about CHD and how it affects parents.
Join us for this episode.
59: Amy Bennet- HLHS, Heart Failure, and Supporting Other CHD Families
58: Margaret Keller - Superhero Mom Who Provides Capes To Children With CHD.
57: Brandi Stafford - Mom of Two Children with CHD, one of whom also has Asperger’s Syndrome.
55: Kristine Slovis - CHD Mom & Organizer of the Super Hero Heart Run In Virginia
54: Kelli Kelley - Holding The Hands Of NICU Families
53: Amanda & Patrick Reck -Life After Their Son's Heart Transplant.
52: Kelly Kassay: Providing Toys To Children In The Hospital In Honor Of Her Son!
51: Alyssa Riedl - Life Is Moving Along -8 Children - 2 Biological - 6 Adopted!
50: Kelly Blumenthal - CHD Mom, Advocating for Families and Children, Fundraising, And Always Inspiring!
49: Tara Tench- The Challenges of Hypoplastic Left Heart Syndrome
48: Jolene Philo-How Trauma and PTSD Affect Children Who Experience Long Hospital Stays and Surgery.
47: Kayla Aimee - Her Daughter Born at 25 weeks, Stayed 6 months in the NICU, and Thriving Today.
46: Melody Nutall- Anencephaly And Making The Most Of Life To Help Other Children and Families.
45: Meagan Nash- Down Syndrome And Changing People's Perceptions Concerning Children With Special Needs
44. Kathy McClelland - Cri du Chat Syndrome and Beauty In Broken Dreams
43: Celeste Brown - Discovering Your Child Has Congenital Heart Disease When She Is 3 Years Old.
42: Ellen Stumbo - Advocating for Children With Special Needs While Raising Two Daughters, One With Down Syndrome and One With Cerebral Palsy.
41: Kristie Klagges -Persevering Through 5 Heart Surgeries And A Heart Transplant.
40: Dana Laukhuf - Congenital Heart Disease Survivor, Who Is Raising 3 Children With CHD.
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