Amanda and Patrick talk about their son who has been through two heart surgeries and a heart transplant.
They talk about their son being born and how they were unaware that he had congenital heart disease.
They talk about the first 24 hours in the hospital and then how their son coded while being transported to UVA.
In addition, they talk about the first heart surgery and how their son recovered.
Moreover, they share how they managed the other kids while in the hospital.
They also talk about receiving help from other parents and how the hospital helped them get additional services to care for their son.
Amanda and Patrick both share that after a heart catheterization their son developed a staff infection.
They talk about the challenges and complications that the staff infection caused.
They also share how the staff infection caused their son to have several strokes.
Plus, they talk about their son having the Glenn heart surgery.
Moreover, they share how their son experienced heart failure and had to have a heart transplant.
They also talk about going to marriage counseling to process what they both had been through together.
Finally, both Patrick and Amanda talk about what it is like parenting a child post heart transplant.
Join us for this episode as Amanda and Patrick share their story.
59: Amy Bennet- HLHS, Heart Failure, and Supporting Other CHD Families
58: Margaret Keller - Superhero Mom Who Provides Capes To Children With CHD.
57: Brandi Stafford - Mom of Two Children with CHD, one of whom also has Asperger’s Syndrome.
56: Jodie Lemacks - CHD Mom and Advocate Who Connects and Supports CHD Families Throughout The United States.
55: Kristine Slovis - CHD Mom & Organizer of the Super Hero Heart Run In Virginia
54: Kelli Kelley - Holding The Hands Of NICU Families
52: Kelly Kassay: Providing Toys To Children In The Hospital In Honor Of Her Son!
51: Alyssa Riedl - Life Is Moving Along -8 Children - 2 Biological - 6 Adopted!
50: Kelly Blumenthal - CHD Mom, Advocating for Families and Children, Fundraising, And Always Inspiring!
49: Tara Tench- The Challenges of Hypoplastic Left Heart Syndrome
48: Jolene Philo-How Trauma and PTSD Affect Children Who Experience Long Hospital Stays and Surgery.
47: Kayla Aimee - Her Daughter Born at 25 weeks, Stayed 6 months in the NICU, and Thriving Today.
46: Melody Nutall- Anencephaly And Making The Most Of Life To Help Other Children and Families.
45: Meagan Nash- Down Syndrome And Changing People's Perceptions Concerning Children With Special Needs
44. Kathy McClelland - Cri du Chat Syndrome and Beauty In Broken Dreams
43: Celeste Brown - Discovering Your Child Has Congenital Heart Disease When She Is 3 Years Old.
42: Ellen Stumbo - Advocating for Children With Special Needs While Raising Two Daughters, One With Down Syndrome and One With Cerebral Palsy.
41: Kristie Klagges -Persevering Through 5 Heart Surgeries And A Heart Transplant.
40: Dana Laukhuf - Congenital Heart Disease Survivor, Who Is Raising 3 Children With CHD.
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