This year has been the best one yet when it comes to this podcast. I’ve been working with an amazing producer (big shoutout to Philly Guillou!) which means we’ve been able to consistently release two episodes a month - and with her support I’ve been able to start working on the kind of content I always felt like I needed when I was younger and early on in my diagnosis.
I’ve learned so much from our guests, and we’ve shared stories, laughs, and a few tears along the way, too.
Instead of releasing something new, I wanted to take some time to look back and reflect on the year we’ve had. There were simply too many brilliant moments from the show in 2022 to share them all, but I’ve picked out some of my favourites which I hope you’ll enjoy.
They might even serve as a good reminder during a difficult time - I definitely benefitted from re-listening to some of the tips, tricks, and hopeful messages.
In this episode we look back on:
* Recognising flare-ups
* The importance of pacing - and some excellent practical tips for how to do it (that doesn’t require endless time just zonked out in a darkened room)
* How to break the ‘boom & bust’ cycle
* The problem with how we conceptualise “self-management”
* What brain fog actually is
* Becoming sick as a child, and how our relationship to our health can change over time
* Navigating relationships with chronic illness
* Listener experiences of navigating work with chronic illness
…and much, much more!
Read the transcript on my blog.
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On convalescence & chronic illness
What actually is Post-Exertional Malaise?
How to survive (and enjoy!) the festive season with chronic illness
What happens when diagnostic criteria aren't fit for purpose?
How to make the most of your medical appointments
Inside a chronic illness-friendly workplace
Navigating work & chronic illness
Can technology teach me to pace?
Fear, Pain & Hope: Movement with Hypermobility
"This really brought us closer together" - navigating a relationship with chronic illness
'I hated myself': becoming chronically ill at 12
Actually useful sleep advice for chronic illness
Planning a chronic illness friendly wedding
The problem with "self-management"
How to reduce brain fog
What actually is brain fog?
“The whole world needs to know that people with disabilities in Ukraine are left behind”
Rethinking Recovery
How to break the boom and bust cycle, for real this time
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