Glass Half Full with Leslie Krongold, Ed.D.
Health & Fitness:Alternative Health
September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.
The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.
To learn about the different types of myotonic dystrophy, visit this NORD webpage.
In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:
Food = Medicine
Passion and Motivation to Move through the Hard Stuff
Working with Wounded Warriors
Music Gives Me a Peace Bubble
Salute to Caregivers
Stories of Healing with Essential Oils
Wuzzup: Growing older with a progressive health condition
What is AAC (Augmentative and Alternative Communication)?
Why is Movement my Medicine?
We need innovative solutions when it comes to the rare (disease) community
Coping with the Holidays
Driving Less Dazy: Responsible vs. Independent?
Don't Laugh At Me - I know how it feels
Uncover the stronger part of yourself...
Neuropathy: Patient Turned Patient Advocate
Physician with Muscular Dystrophy Champions Genetic Testing
“Don’t worry, be happy! It could be worse. It is what it is” by Toxic Positivity.
The size of a grapefruit in your head; I’m grateful that I’m still here
Rare and Invisible Disability + Spoon Theory
Skin Cancer or Adult Acne?
An Unusual Fall
Rock Climbing & Acquired Disability Peer Support Group
Transitioning: Mobility Challenges + Nature = Next Chapter
Movement is Medicine: Get Your Daily Dose
Two Facts & A Feeling: Telling a Patient Story
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The Fertility Conversations Podcast
Nothing much happens: bedtime stories to help you sleep
The Gary Null Show
Get Sleepy: Sleep meditation and stories
The School of Greatness