As I watched the man at the ER writhe in pain, I was deeply envious. His pain had an identity. The nurse was informing him how to prep him surgery and they were flooding his system with pain meds that would make the next few hours fly by. Tomorrow it would be all over for him and he would be back at work in a few days. I was not so lucky. Even though my pain was just as extreme and preventing me from basic tasks. I would receive no meds, no hope, no plan. They were dismissing me once again. They tell you that once again they can't find anything on your blood work, they suggest that you reduce your stress levels, and wait to see a specialist. This scene played out several times a year. It was heart breaking, you no longer have a life, you exist from one appointment to the next.
The problem is that people who are living with chronic pain think that they are patients. They are not. A patient has something wrong that is being treated, attacked, fixed or repaired. A plan exists to restore that patient to a person, and allow them to move on with life.
If, you are continually using the ER to treat your chronic symptoms, it is time to start taking a broader approach. Instead of viewing yourself as a patient, try viewing yourself as a coach. You are the coach and the professionals you entrust your body too are your players. As the coach you need to assess the skills and strengths of each professional, and utilize those strengths for the overall good of the team, a.k.a your health.
It is up to you to organize the team. It is often costly both in time and resources, but someone must be in charge. Many insurance companies have nurses and medical social workers who can come alongside you to help you create a coaching strategy based on the effort and resources you are willing to commit. You have to fight for your health. Without it, much of life will be off limits to you...
Mold Illness With The Better Health Guy Scott Forsgren
Advocating For Yourself As A Minor
Transitions And Changes
Fighting Chronic Fatigue with Dr. Miles Nichols
Intimacy, Hormones and Medical PTSD
132 Doing Hard Things with Suzanne Cross Burden - Recast
131 Living in Alignment with Emily Wishall
130 Eliminate Harmful Radiation from Your Home (A DIY Guide) with Brian Humrich
129 Breaking The Chronic Nightmare of Lyme Disease with Author Brad Montague, PSc.D
128 How I Save My Life with Author Amy B. Scher
127 Figuring Out What Treatments Work Best For "Your Condition" Using AI and Crowdsourcing
126 Habit Stacking Your Recovery with Sarah and Dr. Diane Mueller
125 Transforming PAIN into Empowerment with Transformation Coach Limor
124 Reiki Energy Healing with Author Gregg Kirk
123 Create a Healing VISION for your life with Merry Lynch
122 Busting Biofilms With Dr. Douglas Wine
121 Sex and Intimacy Through Chronic Illness with Reid Richardson
120 EHS Warrior-Beating Electromagnetic Hypersensitivity (EHS), Mold Illness, and Lyme Disease with Brian R. Humrich, PhD
119 Better Together Through The Storm with Author Sarah Walton
118 Next Generation DNA testing with Dr. Stephen Fry of Fry Labs
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