The “Community Spotlight” edition of the “Ask the Expert” podcast series shares the stories of our community members. This episode is part of a special series on grief and loss. Chris Lopardi joined Krissy Dilger of SRNA to share about his family’s experience with acute disseminated encephalomyelitis (ADEM).
Chris Lopardi is the father of Mason Lopardi. Chris lost his son, Mason at age seven to ADEM in May of 2020. Chris, his wife Amanda, and their family have made it their passion to help spread the word of what ADEM is and to help those affected by it. Through their organization, The Miles for Mason Memorial Foundation, they hope to help those affected by ADEM.
1208. MOGcast - Understanding Cortical Encephalitis
1207. MOGcast - The Latest in Treatments from an Adult and Pediatric Perspective
1206. Community Spotlight - Voices of SRNA Volunteers | Part 2
1205. Community Spotlight - Voices of SRNA Volunteers | Part 1
1204. Community Spotlight - Ilona Williams
1203. Community Spotlight - Rick Telander
1202. Increased Intracranial Pressure in Pediatric MOG Antibody Disease
1201. A Conversation about Grief and Loss with Lisa McDaniel
1114. Neurosarcoidosis and Rare Neuroimmune Disorders
1113. Acute Treatments and Rare Neuroimmune Disorders
1112. Social Determinants of Health in Rare Neuroimmune Disorders
1111. Dr. Anderson's Fellowship Research
1110. Can Do MS: Take Charge and Coaching Series
1109. Disability and Rare Neuroimmune Disorders Part 2: Accessibility and Disability Pride
1108. Disability and Rare Neuroimmune Disorders Part 1
1107. Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis
1106. CosMOG - Clinical Trial for MOGAD Treatment
1105. What to Expect Living with NMOSD and MOGAD Long-Term
1104. Community Spotlight - Paul Turner
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