S1E2: Family secrets

In this episode, we begin by reflecting on the counselling interventions and issues raised in episode 1: non-paternity. We then introduce a new case about John* and his mother Eileen and the issue of non-disclosure about a genetic diagnosis in the family. If you haven’t listened to episode 1, start there first.

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More information about topics referenced in our discussion:

• Eno et al., 2018 “Misattributed parentage as an unanticipated finding during exome/genome sequencing: current clinical laboratory practices and an opportunity for standardization”, Genet Med. https://www.ncbi.nlm.nih.gov/pubmed/30214068
• Beagle has Landed podcast https://beaglelanded.com/
• The white ribbon foundation https://www.whiteribbon.org.au/
• Chen et al., 2017 “Patient Perspectives on Intimate Partner Violence Discussion during Genetic Counseling Sessions” J Genet Couns https://www.ncbi.nlm.nih.gov/pubmed/27943088
• Lewis and Robinson, 2017 “Preparing Genetic Counselors for Patient Disclosure of Intimate Partner Violence: An Assessment of an Intervention Toolkit” Human Genetics Theses and Capstones (Sarah Lawrence College) https://digitalcommons.slc.edu/genetics_etd/39/

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*Pseudonyms are used throughout