Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Ryan Norenberg is fighting cardiac sarcoidosis with a one-two punch that includes the use of CBD oil and a holistic diet. Many people who have appeared on the Sarc Fighter podcast have been frustrated by the lack of choices when it comes to treatment of their disease. There is a menu of medicines that people are familiar with ranging from prednisone to Remicade to Imuran and others. For many people, these are only marginally effective.
So you ask yourself, "What if I just ate better?" or "Should I avoid certain foods?"
Ryan says yes. In fact his wife is now a certified Holistic Nutritionist.
In addition, Ryan has turned to a newer alternative - CBD oil. In this podcast, he explains how he uses this over-the-counter therapy to reduce inflammation.
Give the podcast a listen and see if there isn't an opportunity for you to make some lifestyle adjustments, that could improve your situation.
Additional notes from Ryan!
Lindsey Norenberg's Website www.nourishbylindsey.com
Realm of Caring website https://realmofcaring.org/
Here are a couple related to the Omega6/3 topic:
https://pubmed.ncbi.nlm.nih.gov/12442909/
This is an abstract to a research document that one would need to pay for but you can get the idea of it in the abstract provided.
https://www.healthline.com/nutrition/optimize-omega-6-omega-3-ratio
This is a good one I found geared more towards the layman. It explains the importance while providing some specific information about different foods and sources of omega 6’s and 3’s.
As it is with CBD, it is important to get fish oil from a reliable source. As it is unregulated, there is a potential of high mercury content. Additionally, it is recommended to consume in a true liquid oil form that is stored and shipped at cooled temperatures vs capsules that have been on a store or warehouse shelf for unknown time at unknown temperatures. I currently use Nordic Naturals Ultimate Omega liquid available on Amazon and shipped with a cold pack. I take 2800 mg/daily (1 teaspoon).
The probiotic I take is Ther Biotic complete. This one has 12 strains of bacteria.
Here are some related to cannabinoid therapy:
Cannabinoids-as-novel-anti-inflammatory-drugs.pdf
This one focuses more on THC than CBD specifically but provides a good overview of our endocannabinoid system and how it works.
https://realmofcaring.org/roc-research/research-library/?_sft_condition_=inflammation&_sfm_publication_year=1972+2022
Here is a group related to inflammation
Research Library - Realm of Caring Foundation
Here is a group of research articles related to cannabinoids and their impact on immune function.
https://store.healthylivingshop.com/
Here is a link to the Cleveland Clinic Healthy Living Shop. The supplements on this site have been vetted by the CC and they consider trustworthy and reliable. However, that doesn’t mean that there are not other good options out there but the buyer needs to beware.
https://www.charlottesweb.com/
This is my trusted source of CBD. There are several other good ones out there as well. They offer different types (gummies, oil, lotions…) and different ratios of CBD/THC ranging from 100% CBD isolate to full plant extract containing up to the .03% federal limit on THC content.
R44742.pdf
Here is an article I found describing the legislation that established the hemp laws.
Ryan also advises:
.03% THC adds up and is not completely negligible in its effects at higher doses. The Realm of Caring can offer some support here as well. If you do decide to try CBD, I recommend you read up on the “entourage effect”. You can find some articles on the Realm of Caring Research Library page. Basically, studies are limited but there is evidence to believe that CBD is more effective in the presence of THC and other cannabinoids vs isolated by itself.
Charlotte’s Web offers discounted pricing if you register with them and offers further discounts if you subscribe to recurring deliveries. I have found the subscription to be the most cost-effective way to get it.
Episode 112 | aTyr is getting closer to a new drug to fight sarcoidosis.
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Episode 110 | Walgreens is helping to fight Sarcoidosis
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Episode 106 | Rachelle DeMaria just wants to launch her life
Episode 104 | John Martin thought it was time to get his affairs in order.
Episode 103 | Closure. Why we need it and why sarcoidosis won’t give it to us.
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
Episode 99 | How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis community
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cause!
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoidosis in perspective.
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc patients get a fair shake at transplant time?
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Guard.
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