On this episode, we will hear from Amy Meacham, founder of Xtraordinary Joy. Xtraordinary Joy is a non-profit that funds research into an ultra-rare X-chromosome deletion disorder (Xq27.3-q28 deletion) that affects Amy’s daughter. The disorder is so rare that they have only identified 20 other children in 7 different countries with it. We will talk about how the disorder impacts the lives of those who have it, what research is being done to treat it, and how that research could be used as a model to treat other ultra-rare disorders and diseases.
Marcus Tucker - Pit-master of Tailgators BBQ
Dr. Nuri Yeralan - Microsoft
Dean Cacciatore - Cacciatore Foods
Keith Watson - Keith Watson Events
Sam Rosati - Pursuant Capital
Court Whelan - Expedition Guide for NatHab Adventures and Wildlife Photographer
Virtual Reality with Dr. Benjamin Lok
Andy Stark - CTO of EasyRX, Former President/Owner of Jenmar
Evan Ferl - Tech Attorney and Standup Comic
Brad Stumpff - UF Mover Guys
Adam Fehrenbacher - Fehrenbacher’s Artisan Sausages
Gary McClain - Bodybuilder. Trainer. Nutrition Coach. DJ.
Dr. Gordon Hubbell - Zoo Veterinarian & Shark Expert
Kristin Birdsey Klapp & Krista McIver - Education Station & Preschool
Rick Staab - Tapping into the Community to Find a Cure for Dystonia
Chris Decker and Mike Calsam - Whatever it Takes
Jason Hurst - Every Delay Works into Your Favor
Joe Lowry Sr. - Money Man
Joe Cirulli - No Second Choice
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