AiArthritis Voices 360 Talk Show
Education
Are you tired of feeling frustrated and unheard when it comes to your doctors, your disease, and all the challenges that come with it? Wish you had a platform to let it all out and find understanding?
Welcome to AiArthritis Rant Discussions - Inspired by Am I The @$$hole? Brace yourself for a new series that will give you a voice and an outlet to vent your frustrations. In this episode, our co-hosts Leila, Charis, and Patrice dive into the rants submitted by our AiArthritis community and they'll react, comment, and delve into topics that resonate with so many.
From stories of triumph over disease denial to the maddening experience of feeling invisible while in pain, this episode covers it all. Get ready to join us as our co-hosts fearlessly read aloud submissions from the AiArthritis community, sharing rants, vents, and personal stories. Together, they'll explore the burning question: Are you the @$$hole?
If you would like to share your own rant with us for the next episode in this series, submit it here! www.AiArthritis.org/Rant
Episode Highlights:
Our Co-Hosts:
Connect with Leila:
Instagram: @lupuslifestyle.lei
LinkedIn: www.linkedin.com/in/leila-lagandaon
Facebook: @leilaaiarthritis
TikTok: @lupuslifestyle.lei
Charis Hill, who uses they/them pronouns, is a disability activist, writer, speaker and model living with many conditions including Axial Spondyloarthritis (axSpA), Ehlers Danlos Syndrome (EDS), Major Depressive Disorder, Anxiety and Post-Traumatic Stress Disorder. Charis’ multi-tiered work uses narrative engagement to advance social justice for multiply-marginalized disabled people. Charis’ story is regularly featured internationally in media outlets and in the documentary: "Becoming Incurable." In addition to Charis' leadership on patient advocacy organization committees and regular speaking engagements about health and disability, they boast bylines in HealthCentral, Healthline, and Business Insider; including cover stories for Arthritis Today and Spondylitis Plus magazine; and they have been awarded by the Arthritis Foundation and Spondylitis Association of America for their work on legislative advocacy for state and federal policy efforts.
Connect with Charis:
Twitter: @beingcharisblog
Tikok : @beingcharisblog
Facebook: @beingcharis
Patrice was diagnosed with Polymyalgia Rheumatica. Patrice has been in remission off and on during these last 11 years. Patrice also has had several comorbidities: severe hearing loss which resulted in her now wearing hearing aids, a Baker's Cyst, a vein ablation, plantar fasciitis, pseudo gout, and she also has osteopenia. Patrice has been a volunteer with AiArthritis for over 2 years and has been co-host and a host for the podcast several times. Patrice went to EULAR virtually with AiArthritis in 2020 and 2021 and attended the virtual ACR conference in 2021 with AiArthritis.
Connect with Patrice:
Facebook : @PatriceJohnson
Twitter: @patrice.johnson315
Instagram: @patrice.johnson315
Donate to Support the Show: https://www.aiarthritis.org/donate
Sign up for our Monthly AiArthritis Voices 360 Talk Show newsletter! HERE
AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!
Episode 96 - Social Wellness with an AiArthritis disease
Episode 95 - Volunteering with AiArthritis
Episode 94 Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits
Episode 93: Reproductive Health and AiArthritis Diseases
#360it: Medicare Drug Price Negotiation: How Will it Affect Patient Access?
Episode 92 Breaking Research: Pharma & Non-Pharma 2023
Episode 91: AiArthritis Voices 360 REWIND - Distinction Between Autoimmune and Autoinflammatory diseases
Episode 90: Why Won’t They Diagnose Me?
Episode 89: Surgery with an AiArthritis Disease
Episode 88 Biosimilars - Interchangeability & Switching 2023
Episode 86 : Organ Involvement: Disease Symptom or Comorbidity?
Episode 85: Elevator Pitches to Explain AiArthritis Diseases
Ep 84: I’m a Mystery Patient, Now What?
Episode 83: Improving Communication Throughout the JIA Journey
Episode 82: AUTO + Autoinflammatory Arthritis: Diagnosis, Please!
Episode 81 RheumyRounds: The Good, The Bad & The Ugly Pt. 2- Improving Office Visit Communication
Episode 80 RheumyRounds: The Good, the Bad and the Ugly - Improving Office Communication
Episode 79 : Patient Leadership In Research
Ep 78 Diversity Equity Inclusion and Access
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