AiArthritis Voices 360 Talk Show
Education
Have you ever experienced the frustration of not being able to get a diagnosis, or worse, receiving the wrong one?
In this episode, our co-hosts Tiffany, Kelly, and Kerry, dive into what it is to be a mystery patient. In addition, they each share their personal experiences of being a mystery patient, and the challenges they experienced with delayed diagnosis.
They discuss the emotional toll that comes with being a mystery patient, including the frustration, anxiety, and uncertainty that can linger for months or even years. We also explore the physical consequences of delayed diagnosis and the correct treatment.In addition, our co-hosts explore the importance of sharing our mystery patient stories to learn from one another, help ease the burden of being a mystery patient and provide support to others along the journey.
Whether you're a mystery patient or have had similar experiences, this episode sheds light on the lessons learned, triumphs, and struggles that many face and why your story matters. Share your story with us today at aiarthritis.org/mysterypatient and help us all learn more about AiArthritis diseases.
Episode Highlights:
Our Co-Hosts:
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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org). Be sure to check out our top-rated show on Feedspot!
Episode 96 - Social Wellness with an AiArthritis disease
Episode 95 - Volunteering with AiArthritis
Episode 94 Rheumy Rounds Rewind: Improving Doctor and Patient Communication During Office Visits
Episode 93: Reproductive Health and AiArthritis Diseases
#360it: Medicare Drug Price Negotiation: How Will it Affect Patient Access?
Episode 92 Breaking Research: Pharma & Non-Pharma 2023
Episode 91: AiArthritis Voices 360 REWIND - Distinction Between Autoimmune and Autoinflammatory diseases
Episode 90: Why Won’t They Diagnose Me?
Episode 89: Surgery with an AiArthritis Disease
Episode 88 Biosimilars - Interchangeability & Switching 2023
Episode 87: AiArthritis Rant Discussions - Inspired by Am I the @$$hole
Episode 86 : Organ Involvement: Disease Symptom or Comorbidity?
Episode 85: Elevator Pitches to Explain AiArthritis Diseases
Episode 83: Improving Communication Throughout the JIA Journey
Episode 82: AUTO + Autoinflammatory Arthritis: Diagnosis, Please!
Episode 81 RheumyRounds: The Good, The Bad & The Ugly Pt. 2- Improving Office Visit Communication
Episode 80 RheumyRounds: The Good, the Bad and the Ugly - Improving Office Communication
Episode 79 : Patient Leadership In Research
Ep 78 Diversity Equity Inclusion and Access
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