Lisa Loughran from Red Hook, NY, visits Radio Rotary’s microphone to tell about the story behind the annual Red Hook event, Roger’s Run for AMC Awareness. This is a community-wide set of runs and walks that had its inspiration in the discovery vis ultrasound that Loughran’s son would be born with a congenital condition, arthrogryposis multiplex congenita, usually called AMC. This condition affects joints and muscle throughout the body. Roger Loughran was born with his limbs extended—the joints had “frozen” in position. Loughran, a runner and cyclist, originated the run-walk event to raise money for AMSI, where she had discovered other parents of children with AMC, parents whose stories gave her hope. Indeed, twelve years and much physical therapy later, Roger Loughran plays basketball and football. He is well known throughout the Red Hook community. Roger’s Run has involved that community every June in a group project to support research into AMC and its treatment.
Learn more:
Roger’s Run 4 AMC: https://www.rogersrun4amc.com/
AMCSI (Arthrogryposis Multiplex Congenita Support Inc); https://www.amcsupport.org/
AMC Support on Facebook: https://www.facebook.com/AMCSUPPORT/
CATEGORIES
Events
Health
Support Groups
Service Organizations
WORDS TO LINK: Arthrogryposis Multiplex Congenita, AMC, Red Hook, NY, Runs and Walks
--- Support this podcast: https://anchor.fm/radiorotary/supportDutchess County Fair Returns (Aired on August 15, 2021)
Climate Crisis and Climate Justice (Aired on August 8, 2021)
Rotary’s Ribfest Restaurant Revival (Aired on August 1, 2021)
Mental Health Workers Aid Police (Aired July 25, 2021)
The Phoenix: The Pleasant Valley Library (Aired July 18, 2021)
Teaching Adults to Read (Aired July 11, 2021)
Mike Polasek, 7210 District Governor 2021-22 (Aired July 4, 2021)
7210 District Governor 2020-21 Report (Aired on June 27, 2021)
ARC of the Greater Hudson Valley (Aired on June 20, 2021)
Peace Scholar Marie-Paule Attema (Aired on June 13, 2021)
Roger’s Run for AMC (Aired on June 6, 2021)
Guatemala Literacy Project (Aired on May 30, 2021)
Immigrant Center & Festival in Kingston, NY (Aired on May 23, 2021)
Northern Dutchess Community Coalition (Aired on May 16, 2021)
Prevention/Treatment of Substance Use Disorders (Aired on May 9, 2021)
Kingston Rotary’s Philippine Project (Aired on May 2, 2021)
The Box of Hope (Aired on April 25, 2021)
A Nonprofit Place for Senior Living (Aired on April 4, 2021)
Carmel Rotary’s Basketball Challenge (Aired on April 18, 2021)
Enhancing Poughkeepsie’s Schools (Aired on April 11, 2021)
Create your
podcast in
minutes
It is Free
LifeBlood
Navigating Life After 40
Teaching Learning Leading K-12
The Jordan B. Peterson Podcast
The Mel Robbins Podcast