Glass Half Full with Leslie Krongold, Ed.D.
Health & Fitness:Alternative Health
September 15th is International Myotonic Dystrophy Awareness Day. To learn more about helping educate and advocate for Myotonic Dystrophy visit the Muscular Dystrophy Association or Myotonic Dystrophy Foundation.
The purpose of this Awareness Day is to garner the attention of the wider general public, policy makers, regulators, biopharmaceutical representatives, researchers, health care professionals, and anyone with an interest in changing the future of myotonic dystrophy. Raising awareness of myotonic dystrophy will help improve service provision, basic research, drug development, and policymaking related to the disease. Increased funding for myotonic dystrophy research will improve health outcomes, reduce disability, and increase life expectancy for individuals living with the disease, and holds great promise for helping individuals with diseases with similar genetic bases, such as Fragile X syndrome and Huntington’s disease.
To learn about the different types of myotonic dystrophy, visit this NORD webpage.
In addition to this podcast host/producer who lives with Myotonic Dystrophy Type 1, the following podcast episodes have featured guests living with DM1, DM2, or caregivers in a DM family:
Food = Medicine
Passion and Motivation to Move through the Hard Stuff
Working with Wounded Warriors
Music Gives Me a Peace Bubble
Salute to Caregivers
Stories of Healing with Essential Oils
Yoga & Healthy Aging: Maintaining Independence, Activities of Daily Living, and Equanimity
Rare Disease and the Need for Research
Sickness & Grief: Lessons Learned
Support Groups: Attend, Launch, or Facilitate
Every Breath You Take: Tips for Respiratory Health
Pirate as a Disability Action Figure: Disability Awareness Month
Passion: Motivation to Move through the Bad Stuff and Experience Joy
Multiple Sclerosis & Mindfulness Meditation
Preparedness is Universal: Planning for a disaster if you have a chronic illness, physical, developmental, or intellectual disability
Balance & Falling: The 1st Step
Talkin’ Tech with a Software Engineer
Do It for Science: End of Life Decision-Making (# 1)
Ayurveda: Moderation is the Key
Stories of Healing with Essential Oils
Skydiving, Triathaloning, and Mountain Climbing!
Resilience & Aging with a Disability
Accessible Yoga for All
Medical Cannabis
The Science of Yoga
Glass Half Empty: Complaining, Kvetching, and Ranting
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The Fertility Conversations Podcast
Nothing much happens: bedtime stories to help you sleep
The Gary Null Show
Get Sleepy: Sleep meditation and stories
The School of Greatness