Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
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SHOWNOTES:
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)
173. EVERYONE BELONGS by Heather Avis (Behind the Scenes of Her NEW Children's Book- Out NOW!)
172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani
171. What does belonging actually mean? (Storytelling Tour Recap with Heather + Josh Avis!)
170. Why I Became A Pediatrician for Individuals with Down syndrome (ft. Dr. Kishore Vellody)
169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos
168. When is it time to have "the talk" with your child with Down syndrome? (ft. Dr. Katie Frank, PhD, OTR/L)
167. Raising A #BossLady (ft. Rebecca Kutcher)
166. An Interview with An #IronFamily - ft. Jazmine & Chad Faries + Patrick Longstreth
165. Delivering HOPE w/A New DS Diagnosis (ft. Rick Smith, father + advocate!)
164. Choosing Your (Summer) Battles
163. What does success mean to you?
162. What happens after high school? (Ft. Val - Recent OT Grad + TLFP Producer!)
161. Let's Talk About Abortion & Disability
160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)
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158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Author)
157. Sibling Dynamics & Down Syndrome
156. From Special Educator to Education Advocate, ft. Markeisha Hall
155. A Candid Conversation About Raising a Child with A Dual Diagnosis
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