Throwback Episode 205: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko (Originally aired 5/2/23)
Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.
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SHOWNOTES:
Learn more about Down Syndrome Clinic To You
If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!
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--- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support192. Tis' the Season!
191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP
190. Disability & The Church Pt 2
189. Motherhood, DS Advocacy, and Selling Funky Hawaiian Shirts (ft. Holly Simon, 21 Pineapples Shirt Co.)
188. Our 2022 Holiday Gift Guide!
187. Dental Anxiety & Down Syndrome (ft. Dr. Samantha Healy)
186. Our Response to the Ableist Comments on Netflix's "Love Is Blind"
185. What if my child with Down syndrome can't?
184. Busting Myths About Down Syndrome - ft. Madison Tevlin
183. Following the Lead of Self-Advocates (ft. Matthew Schwab)
182. A Day In the Life of Our Friend Jeremy (self-advocacy, independent living, + more)
181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team)
180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)
179. Disability & The Church
178. Healthy (and happy) Aging for Adults with DS - Ft. Margot & Bart from the National DS Society
177. Happiness IS Down Syndrome (ft. Misty Snyder)
176. The Ripple Effect (ft. Nancy & GiGi Gianni)
175. Back to School Listener Q & A!
174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)
173. EVERYONE BELONGS by Heather Avis (Behind the Scenes of Her NEW Children's Book- Out NOW!)
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