When Surgery Isn’t Simple: What hEDS Patients Should Know Before Going Under | Office Hours (Ep 170)

In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how she manages confusing or contradictory advice. Whether you’re new to these conditions or deep in the weeds, this conversation brings clarity to complexity.

Takeaways:

Dr. Bluestein dives into why some patients need significantly more, or less, medication to stay under, and why it’s not your fault if things felt “off.”

She explores how connective tissue disorders can affect everything from wound healing to joint positioning on the table.

Learn how dysautonomia, MCAS, and EDS can complicate anesthesia depth and pain perception during and after surgery.

Linda reflects on how emotional trauma and sensory overwhelm can turn recovery into a mental marathon and why that deserves more attention.

From advocating for specific anesthesia plans to bringing your own blanket (really), Dr. Bluestein shares what patients can do to stay safer and more comfortable.

References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com.

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