Just Listen: Voices of PK Deficiency Podcast
Health & Fitness:Medicine
What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it.
SHOW DESCRIPTION
Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD and Instagram shorturl.at/gmFT4.
TRANSPARENCY STATEMENT
Just Listen: Voices of PK Deficiency and KnowPKDeficiency.com are made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host Rachel Grace has been compensated for her time.
Raising & Being a Teen with PK Deficiency
Replay: My Dad Has PK Deficiency
Peak Registry
Genetics in Pyruvate Kinase Deficiency
REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
Iron Overload with Dr. Sujit Sheth
Definitive Diagnosis
Aging with Pyruvate Kinase Deficiency
REPLAY: Pyruvate Kinase Deficiency Foundation
Understanding Clinical Trials
LIVE in New Orleans: A Red Cell Revolution
Caregiver Series: Transitioning to Adult Care
Replay: The History of PKD
Parents Support: A PKD Caregiver Series
MythBusters Part 2 - Pyruvate Kinase Deficiency Edition
MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
The History of PKD
I Walked in to My Hematologist’s Office: The Power of Storytelling
Beyond the Numbers: The Impact of PK Deficiency
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