How to Talk to [Mamí & Papí] about Anything
Society & Culture:Relationships
We continue our series about food and family featuring our colleagues. When LWC Studios' senior editor Jordan learned that her mother-in-law was diagnosed with Crohn's disease, she worked to quickly figure out how to offer support and what to cook. Patient advocate Mary Mukira shares advice on caregiving around the holidays by adopting a person-centered attitude and preparing inclusive meals.
If you loved this episode, listen to When Family Holiday Cooking Turns Into a Showdown and Questioning Papí’s Food Choices.
Featured Expert: Mary Mukira is the manager of grassroots advocacy at National Patient Advocate Foundation (NPAF), based in DC, and is working to organize a patient-led grassroots movement to transform our healthcare system to prioritize patient and caregiver needs and their preferred outcomes. To achieve this, Mary works closely with members of NPAF's volunteer network and collaborates with patient partners at their sister organization, Patient Advocate Foundation (PAF), to engage patients and caregivers throughout the research process. Learn more about Mary's work here. PAF and NPAF help patients and caretakers advocate for themselves and make informed, personalized health care decisions. PAF provides free case management and financial assistance to anyone with a diagnosed, chronic or debilitating condition within the United States. If you or a loved have have been diagnosed with a chronic condition, visit PAF's website for a list of financial assistance and case management resources.
We’d love to hear your stories of triumph and frustration so send us a detailed voice memo to hello@talktomamipapi.com. You might be on a future episode! Let’s connect on Twitter and Instagram at @TalkToMamiPapi and email us at hello@talktomamipapi.com. And follow us on Apple Podcasts, Spotify and anywhere you listen to your favorite podcasts.
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