When we are planning to start a family we get a picture in our head around what it’s going to look like. It very rarely looks like the romanticised picture we create. Sometimes, the reality is as vastly different to that picture.
In this episode Bri shares how her family doesn’t look how she anticipated. Bri and her husband have two children. When they took him to the hospital with wheezing from a virus their suspicions were confirmed. Ari had a genetic condition. After a plethora of testing it was confirmed that he has a very rare form of Muscular Dystrophy and to their knowledge he is the only living person with that form of MD.
Not to be left out, their eldest son was later diagnosed with type one diabetes. They hit the genetic lottery.
Bri shares how the diagnosis impacts their family, struggles with NDIS, juggling therapy and hospital appointments, as well as the absolute joy that their two boys bring to their lives.
It is really easy to get jaded, tired, cranky when life hands you lemon after lemon but Bri is light and relaxed (at the end of a long day at work!). When I asked what her secret is she said she gave up wine and she gives gratitude at the end of each day. Being grateful for the positives she has in her life every day helps refocus her perspective.
In the episode Bri spoke about some resources:
Muscular Dystrophy Support Australia https://www.facebook.com/groups/240404516426752
Muscular Dystrophy WA https://www.mdwa.org.au/
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E46 - Being a Transwomen in 2022 - The Hidden World of Women
E45 - ADHD in women, adult diagnosis - The Hidden World of Women
E44 - Family & Domestic Violence and Sexual Violence part 2 - The Hidden World of Women
E43 - Family & Domestic Violence and Sexual Violence part 1 - The Hidden World of Women
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E40 - Army Reserve to Navy Mum - The Hidden World of Women
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E38 - Life in and after the Royal Australian Air Force - The Hidden World of Women
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E36 - Conversations Around International Women’s Day - The Hidden World of Women
E35 - Alternate pathways to higher education - The Hidden World of Women
E34 - Intro to Home Schooling - The Hidden World of Women
E33 - Journey into Motherhood, Step Parenting - The Hidden World of Women
E32 - Journey into Motherhood, Same Sex Parenting Part 2 - The Hidden World of Women
E31 - Journey into Motherhood, Same Sex Parenting Part 1 - The Hidden World of Women
E30 - Journey into Motherhood, IVF Egg Donation - The Hidden World of Women
E29 - Journey into Motherhood, Young Mum - The Hidden World of Women
E28 - Journey into Motherhood, Adoption - The Hidden World of Women
E27 - Sharing stories of Motherhood - The Hidden World of Women
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