Trisomy 13 & 18—Family Perspective Wiley and Jenny Purcell
Participants
All participants have no financial conflicts of interest to disclose.
Peer review by Dr. Paul Mann and the MCG Pediatric Podcast Committee
About our guests:
Wiley and Jenny Purcell have been gracious to share their story of their son Samul and their family’s experience with his diagnosis of trisomy 13. We are very excited to share their story!
Learning Objectives:
After listening to this podcast, learners should be able to better understand a family’s experience with:
Links mentioned:
SOFT—Support Organization for Trisomy; www.trisomy.org
String of Pearls: http://www.stringofpearlsonline.org/
Cuddle Cot: https://www.cuddlingangels.com/
Thank you for listening to this episode from the Department of Pediatrics at the Medical College of Georgia. If you have any comments, suggestions, or feedback- you can email us at mcgpediatricpodcast@augusta.edu
Remember that all content during this episode is intended for informational and educational purposes only. It should not be used as medical advice to diagnose or treat any particular patient. We look forward to speaking to you on our next episode of the MCG Pediatric Podcast.
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Trisomy 13 & 18 Ethical Considerations with Dr. Paul Mann
Congenital Hypothyroidism
Childhood Obesity
E-cigarettes
Multisystem Inflammatory Syndrome in Children (MIS-C)
One Pill Can Kill
IV Fluid Update
Kawasaki Disease
Bronchiolitis
Jude's Story & 22q11 Deletion Syndrome
Adverse Childhood Experiences (ACEs)
Sleep Disorders in Children (Part 2)
Sleep Disorders in Children (Part 1)
Sports-Related Concussions
Respiratory Failure
Abdominal Pain
Teaching in the Healthcare Setting
Sepsis
Constipation
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