Sarc Fighter: Living with Sarcoidosis and other rare diseases
Health & Fitness:Medicine
Episode 111 is a special episode of the FSR Sarc Fighter podcast. It's sarcoidosis awareness month -- and the folks who are fighting for us at FSR want to get the word out. So Angela O'Malley and Cathi Davis join me for the show to talk about how they are working behind the scenes to get people to "Say Sarcoidosis." But also on the show is fellow sarc fighter Mathew Hall, who is an Ironman triathlete, who found himself in a hospital bed -- unable even to take a walk down the hall. He joins the show as well to share his story and to talk about his plans to bounce back to the extent he can -- and to use it to raise awareness and some funding for FSR.
Show Notes
Support Mathew https://stopsarcoidosis.rallybound.org/steps-for-sarc-2023/Member/MyPage/6333308/Mathew-Hall
Sarcoidosis awareness Month 2024 https://www.stopsarcoidosis.org/saysarcoidosis/
Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq
More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/
Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc
Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/
Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
MORE FROM JOHN:
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Episode 77 | Covid Vaccines and Sarcoidosis: Surprising new research from the University of Illinois Chicago
Episode 76 | Leeanne West is a scientist who discovered Sarcoidosis in her own life.
Episode 75 | FSR Leaders Dr. Louise Perkins and CEO Mary McGowan on all the current progress.
Episode 74 | A Doctor and Two Sarc Fighters Urge Black Americans to Join Clinical Trials
Episode 73 | FSR is looking for a few good volunteers. Maybe you.
Episode 72 | Sarc Fighter Regina Gordon shares her battle.
Episode 71 | Andrew Brandt is fighting back - for all of us.
Episode 70 | Laura Ward thought she had cancer... but it was sarcoidosis.
Episode 69 | Kinevant Sciences is researching namilumab – a potential new drug for sarcoidosis
Episode 68 | Profound thoughts from a dying man.
Episode 67 | Kristi Hedge begins her sarcoidosis journey.
Episode 66 | Unveiling Possibilities - All about the upcoming Sarcoidosis Summit from the Foundation for Sarcoidosis Research
Episode 65 | aTyr Pharma is getting closer to a potential breakthrough in treating Sarcoidosis
Episode 64 | The Leadership Team at the Foundation for Sarcoidosis Research with an exciting announcement!
Episode 63 | The birds and finding contentedness
Episode 62 | Garrie Farrow had troubles wearing her cute shoes. The problem was in her lungs.
Episode 61 | Expectations and Happiness with Sarcoidosis
Episode 60 | Jack Boepple’s cardiac sarcoidosis hit him like a linebacker. And he would know.
Episode 59 | Angelica wants to know how her grandmother died.
Episode 58 | Time to get ready for Sarcoidosis Awareness Month!
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