On this special episode of the HD Insights Podcast, Dr. Daniel Claassen, chief editor of the HD Insights magazine, serves as guest host in speaking with Dr. Ira Shoulson about his perspectives from the research project in Venezuela in the early 1990s that ultimately led to the discovery of the HD gene. He shares fond memories of what it was like to be part of that project led by Dr. Nancy Wexler. Dr. Shoulson has had a prominent role in HD research throughout the years. He is a co-founder of the Huntington Study Group, and was part of the team that developed the Unified Huntington’s Disease Ratings Scale, or UHDRS. This is also the first episode among others planned that takes a deeper dive into some of the disparities that impact access to quality HD care. In this instance, for the people in this area of Venezuela, the geographic and severe socio economic disparities that isolated them from the rest of the country.
Episode 26 - Erin Paterson
Episode 25 - Seth Rotberg
Episode 24 - Amy Chesire & Greg Suter
Episode 23 - Dr. Nicolò Zarotti
Episode 22 - Dr. Michael Hayden and PROOF-HD
Episode 21 -Brendan McLaren (Monash University)
Episode 20 - KINECT-HD with Dr. Dietrich Haubenberger
Episode 19 - Katie Jackson (Help4HD)
Episode 18 - Ignacio Muñoz-Sanjuán (Venzuela today and FACTOR-H)
Episode 17 - Dr. Leon Dure (Venezuela memories and Movement Disorders in young people)
Episode 15 - Dr. Lauren Byrne (UCL)
Episode 14 - Dr. Bruce Compas (Stress and Families Coping with Chronic Illness)
Episode 13 - Dr. Adam Vogel
Episode 12 - Chandler Swope (HDYO)
Episode 11 - Dr. Mary Edmondson
Episode 10 - Physical Therapy's Role in Huntington's Disease
Episode 9 - Dr. Andrew Feigin (Huntington Study Group Chair)
Episode 8 - Catherine Martin (HDYO)
Episode 7 - Ken Serbin (aka Gene Veritas)
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