SynGAP10 weekly 10 minute updates on SYNGAP1
Business:Non-Profit
Congrats to everyone who did #Sprint4Syngap. Thanks to Stoke for joining! https://twitter.com/StokeTx/status/1523651977594703872
WEBINAR: This Thursday May 12, 2022 join us for the Webinar with #Syngap Grandparent and USC Law Professor, Richard Peterson. Register at https://syngap.fund/IDEA
STUDY: Have you signed up for the Eye Tracking study yet? https://syngap.fund/eyetrack
TWITTER: Here is the thread on Praxis: https://twitter.com/cureSYNGAP1/status/1521852433713950721
GETA: Conference, sign up to hear Ingrid & Steve: https://www.eventbrite.com.au/e/geta-2022-sydney-tickets-302049868287
MICE: Help us Make 2! https://syngap.fund/2mice
RESEARCH: Ben talking about his SYNGAP1 work: https://www.youtube.com/watch?v=U6Z4UDYgGi4
EVENTS:
- June 11 in Philly - Support our team https://syngap.fund/srfmdbr22
- June 25 in DFW - Join us for a family meeting and hear from Dr. Perry
- October 8 in NJ - Caren Leib Gala https://www.syngapresearchfund.org/get-involved/fundraising/caren-leib-gala
- October 8 in SC - Scramble for SYNGAP https://www.syngapresearchfund.org/get-involved/fundraising/scramble-for-syngap
- November 12 in GA - Sparks of Hope Gala https://www.syngapresearchfund.org/get-involved/fundraising/syngap-soiree
- December 1 in TN - Syngap Science Meeting - Stay tuned
EVERYONE SHOULD SIGN UP FOR CIITIZEN ASAP: https://www.ciitizen.com/syngap1/
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 59 of #Syngap10 - May 9, 2022
#F78A1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology
ASOs in the news, let’s discuss in Nashville! #S10e80
#UFDcure CANNONBALL2 is a wrap/half done. #S10e79
Event recaps with special guest hosts #S10e78
SYNGAP1 News: Boston Trip Report, Precision Neuroscience Summit and Relentless Progress. #S10e77
Every Patient Matters. Global Edition: SRF touching Ukraine/Poland 🇺🇦🇵🇱, Greece 🇬🇷, Colombia/LatAmerica 🇨🇴, Netherlands 🇳🇱 & UK 🇬🇧… #S10e76
We 💜Events, Drugs 💊 Rarebase & NOSpharma, Data 👩🏾💻 Simons & Invitae #S10e75
Praxis + Ciitizen = PROGRESS #S10e74
Leon #S10e73
A day in the life of SRF: Greece, Ukraine, Rarebase, Zempleni #S10e72
THE NEXT FOUR MONTHS WILL COME FAST - GET READY! #S10e71
YOU CAN HELP PRAXIS TO PREPARE FOR CLINICAL TRIAL READINESS FOR SYNGAP1 IN PARTNERSHIP WITH CIITIZEN & SRF
Why the Bowie grant is so exciting! Our second collaborative grant! #s10e69
This week was ripe with a promising future! #s10e68
Take time to grieve & then come back to this community to grow. #s10e67
Missense Variants are Finally Getting Attention. Reclassification. Grants. #S10e66
We are learning from the best - A read out from #DSFinDFW Conference. #S10e65
Throw the doors open, build your team, tell everyone. #S10e64
Are you coming to our conference in December? Some goodies to share with your favorite #RareDad - #S10e63
BONKERS week. #S10e62
Thank Goodness we have a dynamic team! Some personal news. #S10e61
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